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stargazer
Starting Member
Australia
19 Posts |
 Posted - 07/29/2010 : 06:33:26 AM
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Hi everyone I just have a quick question I am on Labetalol 300mg 3 times a day things started to go down hill about 3wks ago. My Bp suddenly increased and started meds. I was on them earlier in my pregnancy but we found the cause of my high bp at around 22-23wks and have been off them since I am now almost 32wks. Over the last 3wks my bp has been going up and my Dr has just been increasing my meds. Last week my protein tripled in 2 days and I started getting a lot of symptoms. Last pregnancy I developed Eclampsia things changed with in minutes so I am getting concerned we are heading in the same direction. I am finding that the meds are now no longer lasting the distance and about 2hrs before I am due to take my next dose my bp is getting high again around 160-170/100-105 but once I take my med dropping to around 150/85.
The last few hours I have started having pain just under my ribs and my right shoulder I rang L&D and they were not concerned as my bp was 147/85. Can my meds be masking something more serious going on I know last time when things got bad it did not come down but it all happened so quickly within minutes one minute I was in a hospital bed bp was 140/80 then 15min later my bp was 189/124 I started having seizures. I am getting very nervous it might happen again. Thanks |
Edited by - stargazer on 08/07/2010 04:57:36 AM |
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jenprzygoda
New Member
USA
79 Posts |
Posted - 07/29/2010 : 10:27:32 AM
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| I am a "better safe than sorry" kind of gal. For me, the pain under the ribs and radiating to the right shoulder were the only symptoms of HELLP (besides major swelling that I had had for weeks) that I had, and it went pretty quick from there. I don't know much about the BP meds masking a rising BP, but it sounds like it may be based on the increase in BP right before you take the meds. I never had a BP over 145/90 until after my son was born, so in my case if they were waiting until my BP rose we would have had even more trouble. Again, just my thoughts based on my experience (and this is all so different from person to person) but I would get checked out if nothing else than for the epigastirc pain. A simple blood draw can be done and your liver enzymes, platelets and hemoglobin can be run. Just go to L&D and tell them you need to be checked out - hey, worrying can't be helping your BP either. Take care and keep us posted. |
Mommy to John 5/09
36 weeks emergency c-section Class I HELLP
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alviarin
Ask the Experienced Moderator
USA
1134 Posts |
Posted - 07/29/2010 : 10:44:50 AM
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| In your shoes I would feel better with some labwork. Can you call your OB and see if they can pull some stings for you? If I couldn't get ahold of my doc I would park myself in L&D. Good luck, please keep us posted as you are able. |
Alanna, hypothyroid Mom to Connor & Claire
(severe PE @ 38 weeks & "mild" PE @ 37 weeks);
now chronic hypertensive |
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mommy2maddie
Junior Member
US
119 Posts |
Posted - 07/29/2010 : 11:01:46 AM
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| I know that my doctor would not put me on bp meds in my pregnancies (he did in the beginning with the second pregnancy but I went off them a couple weeks later). He believes that bp meds will mask PE and he will be unable to catch it when it starts to get worse. Only after I delivered did he start the meds. If I were you I would go to L&D anyways and get your rib pain checked out. |
Alissa (22)
DH Richard (23)
DD Madison 6/15/08 at 29 weeks 2lbs. 7oz. 45 days in the NICU Severe PE
DS Richard "RJ" Junior 10/07/09 at 35 weeks 5lbs. 13oz. 5 days in the NICU PIH and PROM |
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aggie95mom
Junior Member
US
434 Posts |
Posted - 07/29/2010 : 1:28:18 PM
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| As annoying as it can be to have to pack up and go, sometimes if you go to L&D, they'll be less likely to dismiss you so quickly like they can do on the phone. I'm sure you would feel more comfortable if someone looked at you and ran some quick blood tests. |
Alysha
DS Jacob 6/30/04, 26 weeks 2 days, 1 lb 6 oz ... 5, happy, and thankfully healthy!
DS Henry 7/1/08, wonderfully FT (37 weeks 3 days), PIH at 33 weeks, mild PP pre-e
Baby Girl!! due October 20, 2010 ... praying for a healthy baby and mom and a husband home for R&R from Afghanistan for delivery! |
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Caryn
Ask the Experienced Moderator
USA
8903 Posts |
Posted - 07/30/2010 : 12:46:01 AM
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Those are high pressures for someone who's medicated; do they know you're on meds when you report those numbers? Have you let them know that the drugs are wearing off before your next dose is scheduled, and what the readings are at that time?
In your shoes, especially with the epigastric pain, I'd want to get checked out in L&D. Please keep us posted as you're able. |
Science is getting us closer to finding a cause, and even a cure. The articles you don't want to miss:
The Preeclampsia Puzzle (New Yorker) and Silent Struggle: A New Theory of Pregnancy (New York Times)
Looking for recent articles and studies? Lectures from researchers? A chance to participate in research?
Caryn, who is not a doctor and who talks about science stuff *way* too much
DS Oscar born by emergent C-section at 34 weeks for fetal indicators, due to severe PE |
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stargazer
Starting Member
Australia
19 Posts |
Posted - 07/30/2010 : 06:01:14 AM
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| Thanks everyone I went to L&D and almost had to fight them to get blood tests done even with my past history. All bloods came back ok though they have increased a fair bit but still what they class as in normal range. I still have the pain in my ribs and shoulder but because my BP seems ok they are not to concerned. I did tell them about my meds seem to be wearing off before my next dose and was just told to take them earlier if needed. My BP when I was there was 152/88 which I was told was perfect I would disagree with that but because it didn't reach the magical 90 they told me to go home and rest. Also when they used a dipstick to test my urine and said it was negative. I don't know what they were looking at because when I got home I tested it using the same brand as they use and it was 3+. I told them about my bp at home and they totally ignored it and said my monitor was out even though it was calibrated by the renal clinic about 3 weeks ago. I will continue to monitor things and if they get worse I might try a different hospital. Once again thanks everyone it is just so frustrating I can see a pattern emerging like last time I just hope I don't end up in the same situation again. |
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Caryn
Ask the Experienced Moderator
USA
8903 Posts |
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stargazer
Starting Member
Australia
19 Posts |
Posted - 07/31/2010 : 05:38:49 AM
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| I was seeing a Fetal Medicine Specialist earlier in the pregnancy but have not seen them for awhile because things seemed to be cruising along ok there for awhile. I spoke to my renal specialist this morning and she is getting concerned also. My 24hr urine I handed in the other day has come back at around 3.5grams. She is going to speak to the head OB at the hospital on Monday as she doesn't think they should push me past 34wks if I make it that far. Her words were they are starting to play with fire now and she does not like it at all. I feel horrible today BP has been high all day and swelling has doubled overnight especially my hands and my heart rate has sat around 140-150 all day even when resting. I feel like you do when you get a bad case of the flu just without a fever and congestion. I have a scan on in 2 days to check growth, cord flow and fluid levels so it will be interesting to see how everything is going. I have had high fluid recently but that is because I have gestational diabetes which was uncontrolled for a few week. Hopefully the OB at the hospital will listen to my renal specialist and start taking things a bit more seriously. |
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jenprzygoda
New Member
USA
79 Posts |
Posted - 07/31/2010 : 08:47:46 AM
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| Just don't be afraid to go to L&D. I started to get sick on Thursday night and on Friday my husband made me call to get an appointment (I had just been there Thursday afternoon). I had an appointment scheduled for Monday so I just wanted to wait until then. Thank goodness my husband insisted I go because my midwife said I would not have made it to Monday. You (or in my case it was my husband because I am so stubborn) know your body best and can just tell when something is just plain wrong. Take care of yourself. |
Mommy to John 5/09
36 weeks emergency c-section Class I HELLP
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alviarin
Ask the Experienced Moderator
USA
1134 Posts |
Posted - 07/31/2010 : 1:14:38 PM
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Please don't be afraid to head back to L&D for more monitoring and bloodwork. My main symptom of severe preeclampsia was feeling weak like a bad case of the flu (w/o vomiting fever or chills).
It sounds like your symptoms are increasing, and preeclampsia (and associated lab results) can worsen in a matter of hours. |
Alanna, hypothyroid Mom to Connor & Claire
(severe PE @ 38 weeks & "mild" PE @ 37 weeks);
now chronic hypertensive |
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Sonja
ATE and Pregnant Again Moderator
5659 Posts |
Posted - 07/31/2010 : 2:45:01 PM
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You know your body better then anyone - if you are feeling like things are getting worse you should go ahead and head in. Is there any way that you can get ahold of your specialist from the hospital - I agree that someone with more experience with pre-e would be your best bet.
We are all just worried because we know that things with pre-e can progress so quickly (as you are well aware of).
As our home page says "know the symptoms, trust yourself."
Take care and please let us know how you are doing. |
Sonja Mom to:
Kira 3/02 37.5 weeks - sudden onset pre-e
Amelia 5/04 37.5 weeks - started meds at 16 weeks - diagnosed with "high cardiac output."
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Caryn
Ask the Experienced Moderator
USA
8903 Posts |
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L412Angel
Senior Member
US
1356 Posts |
Posted - 07/31/2010 : 11:51:31 PM
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| I have to put in my two cents and echo the others, please head to L&D! Please keep us posted! |
*Laura Angel
(Factor V Leiden & Hyperlipidimia)
Mom to Cara Angel, born still at 30+3 days on 11-17-09 due to Severe PE/HELLP(Class III)
Baby #2 due March 2011
"An Angel in the book of life wrote down my baby's birth. And whispered as she closed the book "too beautiful for earth."
http://onlyangelsmakethelist.blogspot.com/ |
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stargazer
Starting Member
Australia
19 Posts |
Posted - 08/02/2010 : 05:11:59 AM
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| Well I have spent the day up at my hospital and I feel like am banging my head against a brick wall. The whole time I was there my BP did not drop under about 160/95 it once again increased before i was due to take my meds but even after taking them it never dropped below 160/95. My head feels like it is about to explode and having lots of visual issues. After spending about 5hrs up in L&D they sent me home. I asked about steroids for our little girls lungs just as a precaution and I was told there was no need as there were no plans to deliver me soon. I did a ctg trace today which seemed to be ok but I did notice that her heartrate was very high around 190 it normally is about 120. I have left a message for my Fetal Medicine Specialist and when I got a call back I was told I needed a new referral to see him again as he works at a different hospital and referrals only last for 3mths when another specialist refers you and the fact that my hospital seems to be ignoring what is going on I don't like my chances of getting a new referral. I just don't know what else to do except turning up on the doorstep of my L&D everyday. |
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jenprzygoda
New Member
USA
79 Posts |
Posted - 08/02/2010 : 08:39:22 AM
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| I know it might not feel that way, but you are doing a great job. I can't believe that they just sent you home. Camping out at L&D sounds like it may be your best option. Do you have someone who can go with you and advocate for you? If they try to send you home again, just say no, I am not comfortable going home because I am too sick. I am sure that you sitting in their waiting room wouldn't look too good for them. I am not sure what the laws are in Australia, but is there anything about how a hospital has to take you if you are sick? Could you try a different hospital? You are doing an amazing job of staying on top of your health and listening to your body, don't stop! I wish I could just go there with you and make them help you!!! Take care and let us know how things go. |
Mommy to John 5/09
36 weeks emergency c-section Class I HELLP
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AnneS
Assistant Forum Administrator
USA
2558 Posts |
Posted - 08/02/2010 : 11:50:39 AM
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| If you are having visual disturbances along with everything else, I would go back to L&D and camp out. Can you get in to see your regular doctor or get that referral in motion? Take care of yourself. |
Anne
DH Richard
DS Parker 7/6/03(severe pe)33wks
DS Griffin 2/17/06-2/21/06, 25 wks,IUGR and Low Amniotic Fluid
DD Clover 6/25/08 35 wks, NO PE! |
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alviarin
Ask the Experienced Moderator
USA
1134 Posts |
Posted - 08/02/2010 : 9:56:05 PM
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| Besides camping out at L&D and talking to your regular healthcare provider, maybe you could try talking to your renal specialist again. You could update them on your new symptoms and what happened at L&D and see if they have any more advice for you. Good luck, please keep us posted as you are able. |
Alanna, hypothyroid Mom to Connor & Claire
(severe PE @ 38 weeks & "mild" PE @ 37 weeks);
now chronic hypertensive |
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TracyM
Junior Member
Australia
329 Posts |
Posted - 08/02/2010 : 11:00:44 PM
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I'm not sure where you are...I'm in Adelaide, if I can be of any help please let me know.
I would (and have done so myself) refuse to leave the hospital until you had a second opinion. I sat in the waiting room of womens emergency after being discharged at 1am and it didn't take long before they realised I was serious about not leaving without more than the cursory once over that I had gotten with all of my concerns ignored.
I found a few of the nurses would dip the strip into the urine, whip it out and call it good with just a cursory glance when it had barely had time to soak in. Some didn't take bp correctly and were just happy getting a low reading. If you request it, they must call a dr into see you and if you're not happy with what they say, ask for another one. They cannot refuse you. Does your hospital have a day assessment unit? Can you ask to be admitted to that for a days monitoring? They will do bloods, a CTG and regular bp monitoring.
I was also admitted for constant monitoring for fetal tachycardia when HR was conistently above 160bpm...190 is way too high.
In your situation I would 1. go to another hospital if possible or 2. go back and not leave until you were convinced they had checked you out thoroughly and were doing ok or 3. find some Fetal Medicine dr's in the phone book, or a private OB that works from your hospital...call them and ask for advice on how to get seen.
Keep us posted if you can :) |
Tracy
mum to:
Jack - 9 (37 wks, 5lb 14oz, mild PE)
Kate - 5 (33 wks, 4lb 2oz, severe PE, oliguria) |
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stargazer
Starting Member
Australia
19 Posts |
Posted - 08/03/2010 : 6:32:18 PM
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TraceyM - I am in NSW and so sick of having to fight to get anything done. Maybe it is a Aussie thing that they just seem to ignore everything until things turn really bad like they did last time.
I spoke to my Renal Specialist again yesterday and she is going to ring the head OB at the hospital to try and work things out once again. She is getting very concerned especially once I mentioned the cramps I have been getting about every half hour. They are not the normal leg cramps they are over the top of the foot the tendon that goes from your big toe over the top of your ankle at the front and runs up to your shin keeps on having spasms my whole foot flexes and shakes. It is very hard to explain but she thinks they are more neurological than typical cramps I think she explained them as possible Hyperactive Deep Tendon reflexes. My labs are still classed as normal even though are on the top end of normal she thinks the sudden rise in my liver function is a warning sign of what is to come.
I had a scan yesterday and so far our little girl looks ok her heart rate was still very high but instead of having low fluid mine is extremely high. I have a appointment today in the High Risk Clinic and hopefully she has had a chance to speak to the Head OB she also wants me to make sure I see one of the Senior OB's she was saying if I get one of the junior staff to refuse the appointment until I get to see someone who has the experience to deal with the situation. Things are not great I can sense that something has changed but trying to get someone to listen is a different story. Hopefully I will get some action today when I see one of the OB's. |
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TracyM
Junior Member
Australia
329 Posts |
Posted - 08/03/2010 : 11:35:15 PM
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Good luck today :)
I found that some people took my symptoms more seriously than others. I just kept being the really loud squeaky wheel until the right person heard.
Do insist on seeing the senior OB. Don't leave until you have. Make sure everyone (and I mean anyone who will listen) knows your previous history and your current symptoms. Especially the suspected neurological symptoms. If you're lucky one of them will hear what you're saying and err on the side of caution.
I was lucky in the fact that I was assigned to the Professor of OB in the high risk antenatal clinic due to him running a research trial that I was partaking in. So my appointments were all handled beautifully with 12 hr urine tests and u/s fortnightly, yet I still had to fight to be taken seriously nearly every single time I fronted to emergency.
Please let us know what happens today if you can, although I really hope you're admitted even if it's just for 24hr observation. |
Tracy
mum to:
Jack - 9 (37 wks, 5lb 14oz, mild PE)
Kate - 5 (33 wks, 4lb 2oz, severe PE, oliguria) |
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stargazer
Starting Member
Australia
19 Posts |
Posted - 08/04/2010 : 04:30:00 AM
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| Well finally someone has listened got a great OB today who was more concerned about how bad I was feeling over anything else. She thinks patients with PE are the best indicator of what is going on over all the lab tests ect. So I have now been admitted in to hospital I am amazed at the difference between the ward staff and L&D staff. They just did my BP and it was 170/98 and it has freaked them all out and getting a OB in to see me. In the L&D they would of dismissed it and sent me home. My labs are not good either now so I have been given my first dose of steroids for our little girls lungs they are just trying to work out the balance of what is safe for me and our baby and when they need to deliver. I feel so much better being admitted and knowing I am in the right place if things need to happen quickly. |
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jenprzygoda
New Member
USA
79 Posts |
Posted - 08/04/2010 : 07:12:07 AM
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| Wow, so glad you are in good hands now. I am sure it makes you feel much more comfortable knowing that they realize your condition needs monitoring and serious OBs. Let us know how you are doing when you are able. |
Mommy to John 5/09
36 weeks emergency c-section Class I HELLP
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Caryn
Ask the Experienced Moderator
USA
8903 Posts |
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TracyM
Junior Member
Australia
329 Posts |
Posted - 08/04/2010 : 9:00:56 PM
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Glad to hear they are finally taking you seriously !
Hoping for a long and uneventful stay for you...or if not a safe early delivery :) |
Tracy
mum to:
Jack - 9 (37 wks, 5lb 14oz, mild PE)
Kate - 5 (33 wks, 4lb 2oz, severe PE, oliguria) |
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alviarin
Ask the Experienced Moderator
USA
1134 Posts |
Posted - 08/06/2010 : 12:41:37 AM
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| I'm so glad you are being watched more closely now. Good for you for being persistent and trusting your instincts. Good luck, and please update us when you can. |
Alanna, hypothyroid Mom to Connor & Claire
(severe PE @ 38 weeks & "mild" PE @ 37 weeks);
now chronic hypertensive |
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stargazer
Starting Member
Australia
19 Posts |
Posted - 08/06/2010 : 01:25:13 AM
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| Thank you everyone for all your support. I have just been discharged from hospital my liver function seems to of stablised for now. My BP is still high averaging around 150/96 but has not really gone up any higher while I was in there and they admitted to me they desperately needed my bed they had women having c/s and no beds for them. I am a bit concerned that I have been having lots of nausea and vomiting even in the hospital everything that hits my stomach comes straight back up again and they still sent me home the last PE bloods they took were over 24hrs ago. My husband and I have decided that if things get any worse we will go to a different hospital the problem is our next closest hospital is over 1hr away. I will continue monitoring things at home and if I don't go to the other hospital I have Day Assessment appointments every second day. I just want to eat again without being sick I am a bit over it all now. |
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alviarin
Ask the Experienced Moderator
USA
1134 Posts |
Posted - 08/06/2010 : 02:06:39 AM
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Frankly I'm worried about you with those symptoms, especially if your last lab results weren't good.
Are you in contact with the OB you liked, do they know you have been discharged? If I were you I'd give them a call soonest and update them on your situation.
Can you get repeat labs today, even if the closer hospital doesn't have any free beds? You may be better off trying the other hospital, especially if they have a higher level NICU (since they tend to see more of the difficult cases).
Please take care! |
Alanna, hypothyroid Mom to Connor & Claire
(severe PE @ 38 weeks & "mild" PE @ 37 weeks);
now chronic hypertensive |
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stargazer
Starting Member
Australia
19 Posts |
Posted - 08/06/2010 : 06:37:06 AM
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| I just went and had a shower and I seem to have a lot of large bruises from were my toddler was climbing over me this afternoon. It did hurt at the time she is not the most gentle of kids but was a bit shocked at how badly I have bruised. I am getting pain in what I would say in the bottom of my lungs on both sides it hurts to take a deep breath I think it is from all to vomiting though. Should I be concerned about the bruises they are quite dark or is it just one of those things. I am starting to think I am just getting paranoid about every little thing that happens. Thanks |
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jenprzygoda
New Member
USA
79 Posts |
Posted - 08/06/2010 : 07:53:42 AM
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| Check and see if your OB can help out at all. If they can't or you can't get in touch with them, just go to the other hospital. I agree that with a higher level NICU they will have more experience with high blood pressure and all of your related symptoms. It is so hard to know how all the symptoms are playing a role since PE/HELLP is so crazy - I would let some doctors who have experienced more of these cases make a determination. Take care of yourself and just keep being persistent. Ultimately, you are the one who knows when you and your baby need more help, and it sounds like you are at that point. |
Mommy to John 5/09
36 weeks emergency c-section Class I HELLP
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alviarin
Ask the Experienced Moderator
USA
1134 Posts |
Posted - 08/06/2010 : 09:40:42 AM
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Easy or unusual bruising can be a symptom of HELLP syndrome (so can vomiting and epigastric pain). If I were you I wouldn't be able to relax without recent (like today!) blood work ruling out HELLP syndrome.
Correct me if I'm wrong, but it sounds like you have already met the diagnostic criteria for preeclampsia (high blood pressure plus proteinuria). As you can see from many of our stories preeclampsia can worsen quickly, in a matter of hours. Unfortunately one isn't out of danger from preeclampsia and HELLP syndrome until six weeks after delivery.
In my opinion, there is no such thing as too paranoid when it comes to preeclampsia. Vomiting in late pregnancy is *not* normal. And trust me, they don't give steroid injections without cause!
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Alanna, hypothyroid Mom to Connor & Claire
(severe PE @ 38 weeks & "mild" PE @ 37 weeks);
now chronic hypertensive |
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SaraB
Community Forum Administrator
USA
2995 Posts |
Posted - 08/06/2010 : 10:22:10 AM
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Just want to chime in and echo Alanna and Jen - everything you are mentioning is concerning. If I were in your shoes, I'd be on my way to the hospital an hour away. Getting some current HELLP labs done would help put your (and our!) minds at ease a bit.
Do take care. |
Sara
Maggie, June 2003, 29 weeks, severe preeclampsia
Logan, January 2005, 32 weeks, severe preeclampsia/HELLP |
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stargazer
Starting Member
Australia
19 Posts |
Posted - 08/07/2010 : 04:53:07 AM
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| Thank everyone once again. I ended up going to the other hospital last night and they took things very seriously. They took bloods as soon as arrived and were very concerned about how severe my bruising was and the vomiting. My BP was 190/117 when I arrived they started Mag straight away and within 1.5hrs of arriving our little girl was born via emergency C/S weighing just over 3 pounds at 32wks and 5 days. My husband said she is doing well I have only seen pictures so far but they are still monitoring me very closely and hoping I will get to have my first visit in the morning. |
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jenprzygoda
New Member
USA
79 Posts |
Posted - 08/07/2010 : 10:21:48 AM
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| Congratulations! So happy that they took you seriously and are continuing to monitor you. Wishing you and your new daughter all the best! |
Mommy to John 5/09
36 weeks emergency c-section Class I HELLP
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rachelc
Advanced Member
USA
636 Posts |
Posted - 08/07/2010 : 12:04:36 PM
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| I am so glad that they got you delivered. I hope that your baby girl does well. Congratulations! |
Rachel Proud Mom of 3 Girls!
Courtney 3 lb. 13 oz born 9/12/99 33 weeks due to Severe PE
Sierra 6 lb. 8 oz. born 8/1/04 36 weeks due to PE
Haley 5 lb. 7 oz. born 5/8/07 33 weeks due to Severe PE |
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Caryn
Ask the Experienced Moderator
USA
8903 Posts |
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alviarin
Ask the Experienced Moderator
USA
1134 Posts |
Posted - 08/07/2010 : 1:47:08 PM
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I'm so thankful you went to the hospital and were delivered safely.
Congratulations on the birth of your little girl. I wish you a speedy recovery and hope you are both home together soon. |
Alanna, hypothyroid Mom to Connor & Claire
(severe PE @ 38 weeks & "mild" PE @ 37 weeks);
now chronic hypertensive |
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amypete
Junior Member
126 Posts |
Posted - 08/07/2010 : 3:56:49 PM
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| Wow! I'm so glad your story has a happy ending. I hope your little girl does well and grows and grows. It is so good that you pushed and went to the other hospital and got the help you needed. Sounds like things good have been a lot worse. I hope you can rest up and feel better. You've been through a lot the past few days. But congratulations!! |
DD Jillian 2/01 severe pre-e
DS Hayden 3/03 severe pre-e
2 losses
DD Kara Jane 8/07 mild pre-e
Due 8/24/10 with a girl! Mild pre-e dx as of 7/10 |
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ktsl123
Starting Member
US
46 Posts |
Posted - 08/10/2010 : 12:17:23 AM
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| This post was increasingly scary as it seemed like no one was caring enough in the hospital until the end. I am glad your baby and you are doing ok. |
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FAQ
Can BP Meds Mask The Progression Of PE - Updated
